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General Resources

The Bladder Cancer Advocacy Network (BCAN) is a community of patients, caregivers, survivors, advocates, medical and research professionals united in support of people touched by bladder cancer.


NMIBC That Returns After BCG Tip Sheet for patients scan me



Thinking Through Decision Making | When Bladder Cancer Returns After BCG Webinar


Patient-Centered Outcomes Research Institute (PCORI) Helps people make informed healthcare decisions, and improves healthcare delivery and outcomes, by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community.


ClinicalTrials.gov is a registry of clinical trials. It is run by the United States National Library of Medicine (NLM) at the National Institutes of Health, and is the largest clinical trials database, holding registrations from over 329,000 trials from 209 countries.


CISTO Portal For Study Staff use only. Registration and password required.


Academic Journal Articles

Articles co-authored by CISTO medical professionals

Patient and public involvement in the design and conduct of a large, pragmatic observational trial to investigate recurrent, high-risk non–muscle-invasive bladder cancer

Dr. John L. Gore - University of Washington.
Dr. Angela B. Smith - University of North Carolina


Nonmuscle Invasive Bladder Cancer Influences Physical Health Related Quality of Life and Urinary Incontinence

Dr. John L. Gore - University of Washington.

Impact of bladder cancer on health-related quality of life

Dr. Angela B. Smith - University of North Carolina


Adaptive Immune Resistance to Intravesical BCG in Non-Muscle Invasive Bladder Cancer

Dr. Max Kates - Johns Hopkins University.
Dr. Ashish Kamat - Univ-Texas MD Anderson
Dr. Sima Porten - University of California, San Francisco
Dr. Trinity Bivalacqua - Johns Hopkins University.


Discomfort and relieving factors among patients with bladder cancer undergoing office-based cystoscopy

Dr. Angela B. Smith - University of North Carolina
Dr. John L. Gore - University of Washington


Patient-centered prioritization of bladder cancer research

Dr. John L. Gore - University of Washington
Dr. Angela B. Smith - University of North Carolina


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